Until recently there was no cure or therapy available for the patients with SMA. Anika was lucky however, if we could call a baby diagnosed with SMA lucky, that she was born at the time when something could be done. Since she was 2 months old, she has been treated with Spinraza, a treatment that could slow down the progression of the disease. Unfortunately, as time goes by, Anika’s breathing and swallowing functions are weakening and more and more assistance (mechanical and personal) is required to keep her alive.