About SMA

SMA is a rare, genetic disease that leads to progressive muscle weakness, until the breathing stops…

Persons suffering from SMA lack an important gene that produces a protein necessary for functioning of motor neurons, which are in charge of transmitting impulses to the muscles. Without this protein, motor neurons lose their function and die out. Consequently, without the impulses from the motor neurons, the muscles undergo progressive weakening and atrophy. The atrophy starts with large muscle groups, arms, legs and neck. After some time, it progresses to smaller muscle groups in charge of vital functions of swallowing, breathing, or coughing, eventually leading to death.


Anika's family appeals to all people of goodwill for help in this endeavour.